The waiting game is over, for now. We received word yesterday that all three tests have been scheduled on three different days next week. The first will be the bone scan, scheduled for Monday morning. On Wednesday, we'll be heading in for the preliminary work for the MIBG test, and then returning on Thursday for the MIBG and the MRI.
That meant the family was in the clear to head to Naples together for Jeff and Lisa's wedding. We had about 2 hours to book tickets, rent a car, pack, and get to Logan. I'm typing from the hotel room in Naples, so somehow we pulled it off. My mom was able to meet us in Orlando, and after a quick high-five with my dad, he returned to Daytona and Mom came with us to Naples to help with the kids. She'll be flying back with us to help during a week of many tests.
After breakfast together this morning and a few errands, the family went to the beach while Tim and Jeff finalized wedding details. The rehearsal is now complete, the dinner was delicious, the wedding is tomorrow and we fly out first thing on Sunday morning. A whirlwind trip, but great to celebrate with Jeff and Lisa.
Tess drew a picture of herself before we left. It started with a round circle: "This is my clump." Then she drew the rest of her body around it. I've heard that kids very quickly define themselves by their illnesses. She's so positive, so rambunctious, so not sick. Kind of 'matter of fact' about the whole thing. She's one of the flowergirls in the wedding, and Justin is the ring bearer. So please pray that they'll not be afraid tomorrow. Pray that they'll actually come up the aisle!
So we probably won't be posting until we go through the Monday bone scan ordeal. We continue to be thankful for all of you - for your prayers, for your concern. We'll post again when we get home.
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2 comments:
Hi Tim, Jo, J & Tess,
We just wanted you to know that we're praying for Tess and for you all. We've been keeping up to date with your activities through John's emails and were so happy to see that you've made it to Naples. We'll pray that you are able to enjoy the wedding and that all goes smoothly for you. Tell Tess to keep drawing those great pictures and that we want to see her whole artist's portfolio when she visits Canada next time. Tell her we love her and that she's a very brave young lady. We are sending her lots of love and kisses and are so glad her Gramma Lynn is there with her this week. Tell Lynn that if there's anything we can do to help, we're here....I'm just back from business travel and won't be going again until mid-April.....I'd love a trip to Boston if she needs a pick-up!!
We're sending all our love and prayers to cover you all.
Donna & Andrew
wanted to say thanks for keeping everyone in the loop. It's amazing the community that can be rallied on the web. May God display his great love through crisis again. As Julia (2) clings to my neck and gives hugs and kisses, I can only imagine being in your position and even the imagination breaks my heart.
Leanne (Smith) Wiebe
Thunder Bay
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